About Lymphoma TrialsLink
If you would like to know more about Lymphoma TrialsLink, you might find these frequently asked questions and answers helpful. You can also email us with questions and comments at trialslink@lymphoma-action.org.uk.
We are not able to refer people to specific trials. If you’re interested in taking part in a trial you have found on Lymphoma TrialsLink, we recommend you take the trial summary to discuss with your medical team. They can advise you on whether you might be eligible for the trial and how you can take part based on your individual circumstances.
On this page
Why did Lymphoma Action develop Lymphoma TrialsLink?
How do Lymphoma Action source lymphoma trials information for the database?
What lymphoma trials are covered by Lymphoma TrialsLink?
How can I find a trial that might be suitable for me?
What if there isn’t a trial for my type of lymphoma?
If there is a trial for my type of lymphoma, how do I know if I am eligible?
You mention a trial for my type of lymphoma, but I’ve been told I’m not eligible
Where can I find more information about clinical trials?
How is Lymphoma TrialsLink funded?
Why did Lymphoma Action develop Lymphoma TrialsLink?
Deciding whether to take part in a clinical trial is an important decision that you should make with your medical team. We developed Lymphoma TrialsLink as a place to find information about lymphoma clinical trials – what they are and what they involve – and to search for a UK-based clinical trial that might be suitable for you. Our aim is to help you to make informed decisions about your lymphoma treatment.
We are not able to refer people to specific trials. If you’re interested in taking part in a trial you have found on Lymphoma TrialsLink, we recommend you take the trial summary to discuss with your medical team. They can advise you on whether you might be eligible for the trial and how you can take part based on your individual circumstances.
Clinical trials play an important role in advancing treatments and improving outcomes for people affected by lymphoma. We have a news section with the latest updates on lymphoma trials.
How do Lymphoma Action source lymphoma trials information for the database?
We search a number of databases that list trials in many disease areas every month. This includes:
We only include trials that are recruiting adults with lymphoma in the UK.
What lymphoma trials are covered by Lymphoma TrialsLink?
We cover phase 1, 2 and 3 clinical trials, non-drug and non-treatment studies, and significant non-lymphoma specific trials (cross-cancer treatment trials).
Phase 1 trials are very early-stage trials and usually only recruit small numbers of people with lymphoma. They are often only open for a short timeframe, and eligibility frequently changes. Therefore the information we provide in our summaries, although correct at the time of publication, may be out-of-date.
Phase 4 trials are not covered by Lymphoma TrialsLink. These trials find out more about a treatment once it has been approved for use. They are usually carried out in people who are already having that treatment as part of their care.
It is very important that you discuss any trial with your medical team if you are interested in taking part. They can advice you on whether you might be eligible for the trial and how you can take part.
How can I find a trial that might be suitable for me?
With a huge variety of trials on our database it is useful to look at only trials that are suitable for you:
- Select your type of lymphoma from the drop-down menu and click 'apply filter'. This will bring up all the trials and research studies that include people with that type of lymphoma.
- Filter the results even further by selecting the status of your lymphoma: relapsed, refractory, previously treated or untreated.
Some of the trials in the list may only be recruiting people with the type of lymphoma you selected. However, many trials recruit people with several types of lymphoma, any type of lymphoma, or even people with other cancers as well as people with lymphoma.
Each trial summary provides brief information about what the trial is testing and includes links to further information about what taking part will involve, and who might be eligible to take part.
We try to review and update our trial summaries monthly but we cannot guarantee that they are up-to-date due to the constantly changing nature of clinical trials. We therefore always advise that you check these links for locations and eligibility.
We cannot refer you to any of the trials. We recommend that you take the summary of any trial you think might be relevant for you and share it with your consultant, who can give you further advice based on your individual circumstances.
What if there isn’t a trial for my type of lymphoma?
It might be that there isn’t currently a trial suitable for you. New clinical trials do open for people with lymphoma throughout the year, so come back to Lymphoma TrialsLink to see if there are new trials open that might be suitable for you.
If there are no clinical trials suitable for you, talk to your medical team about other options.
If you haven’t found a trial for your type of lymphoma and you’d like to speak to someone for emotional support, you can call our helpline on 0808 808 5555, Monday to Friday, 10am to 3pm. They are also available via Live Chat on our website.
For further information about clinical trials, you can email the Lymphoma TrialsLink Team at trialslink@lymphoma-action.org.uk.
If there is a trial for my type of lymphoma, how do I know if I am eligible?
Our trial summaries include a brief description of the eligibility criteria and a link to the full eligibility criteria used to decide if somebody is or isn’t suitable to take part in each particular trial.
We recommend that you take the summary of any trial you think might be relevant for you and discuss it with your medical team, who can give you further advice based on your individual circumstances. Your medical team have detailed knowledge of your medical history and are best placed to determine if you are eligible to enter a given trial.
You mention a trial for my type of lymphoma, but I’ve been told I’m not eligible
All clinical trials have strict eligibility criteria governing who can and can’t take part. These are important because they make sure that the clinical trial is safe for the people who take part and that it compares different treatments in people who have similar characteristics (such as type or stage of lymphoma).
Although it can be disappointing to find out you don’t meet the eligibility criteria for a trial, it is for your own safety and to gain accurate results from a clinical trial. It is always best to talk to your medical team about your options.
Our helpline can offer emotional support and has experience helping patients, their family and friends through difficult times. You can call us on 0808 808 5555, Monday to Friday, 10am to 3pm.
Where can I find more information about clinical trials?
You can find more information about what clinical trials are, including how they are planned and organised, what is involved in taking part in a clinical trial, and what else is involved in developing new treatments.
How is Lymphoma TrialsLink funded?
Lymphoma TrialsLink is funded by voluntary donations from Lymphoma Action supporters. We’d like to thank everyone who has contributed towards the charity and the running of Lymphoma TrialsLink.
Lymphoma TrialsLink can also be part-funded by external companies, including healthcare and pharmaceutical companies. In accordance with how we work with healthcare and pharmaceutical companies, they have no influence over the content of the information we provide.
Trusted Information
